Wheelchair backpack with embroidered sign saying "#End Institutional Bias - I'm not your cash cow"

Fighting the Disability Industrial Complex

What I repeatedly see is a policy that allows extreme profiting from disability and inequitable delivery and utilization of Home and Community Based Services.

There is a genocide being covered up in America. People with disabilities are being murdered in group homes. Case in point, private group homes owned by KKR are under investigation currently. I’m waiting to see who will get convicted of murder with a life sentence in prison.

There are three things happening in America:

  1. People like myself can not find Medicaid Consumer Directed personal care in home attendants because they are not paid anything close to a living wage. A fast food job pays more than a in-home CD attendant.
  2. Private companies can buy group homes and rack in extreme profit off beds while people with disabilities are abused neglected and murdered. Group homes are allowed to pay more to their attendants than Consumer Directed. Remove penalties for supplementing a CD attendant’s pay so I can compete with fast food and group homes. Close the gap between minimum wage and living wage rates for Consumer Directed Medicaid in-home Personal Care Attendants.
  3. Agencies can start an attendant business anywhere and lack regulations. Because of these agencies’ unprofessionalism and unethical behavior, their attendant turnover rate is extremely high. The agency is paid when their attendants do not come to work, which is Medicaid fraud. These agencies are numerous which depletes my hiring pool.

Shut down agencies and bring back tools to empower people on Consumer Directed such as MySupport.

Make it clearly known and easily found for the public, the pay rates in an hourly format for attendants working as Consumer Directed, in-home, agency, and group home.

My husband can not return to work with the current state of in-home attendants.

I once worked from home and was paid a full wage. One of the factors of why I resigned was the current state of in-home attendants.

I’m on a conveyor belt of a broken system with no choice but a group home to be a fat paycheck in somebody’s pocket.

Close the gab between minimum wage and living wage rates for Consumer Directed Medicaid in home Personal Care Attendants. In Virginia the gap is $7.

How much is Virginia’s GDP tied to extreme profiting off disability services?


Letter contributed by Ivy Kennedy

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