Don’t Tell, Don’t Ask

The One Thing that got me into this disability stuff wasn’t the crazy bureaucracy, or the messed up systems, or even the pervasive disability discrimination that I never noticed before.

It was that the only way I ever seemed to find anything out was that someone (usually a Mom) would mention something in passing or answer a question while we were waiting around or having coffee.

It totally one-thousand-percent flat-out drives me nuts

It drives me so crazy, I’ve given it a name:

“Don’t Tell, Don’t Ask”…

… in that the “keepers of the systems” don’t ever seem to want to tell you what is going on, what your options are, how things work, what you should do, what you shouldn’t do, or anything slightly kind of, sort of even a hint of vaguely useful or helpful…

..snd then, if you start asking questions or doing research, everything is buried in a PDF if available at all or reluctantly published but not publicized without logic or context…. Or you are obliged to pay some consultant, advocate, or lawyer to get the answer for you when it is actually public information… or should be.

This is my Nemesis

My Super-villain. My Joker. My Lex Luthor. My Borg. My Sith Emperor

This is why Disability Almanac exists.

There is no excuse for information about how all aspects of disability shouldn’t be easy to find so you can make smart decisions for yourself or your child… and that we can work together to improve this mad maze so that it serves everyone much better.

(and I’m darn angry about all the other things too!)

What do you passionately want to change?

Shoot me a note. Maybe we can help each other. This is a team sport.